I am an Endless Legend

This morning I scan Facebook for motivation and laughs.  I hate the news. Rarely do I search out news.  I am skeptical in its presentation versus reality.

Within the search, I find this.

Seb’s video motivates me.  Focus on today.  Small steps.  That’s all I hear.

Tonight I find a hoodie with my Maiden name which has a saying….

“I am an Endless Legend.”

And I feel like I can be a Super Hero.  Yep that’s right.  Click on the link to see what motivates me to write about it.

http://www.sunfrogshirts.com/DOUGHTY-3254-White-29514080-Hoodie.html?23035

My maiden name is Doughty.

Today our temps reach above 0C.

I am closing in on living with Type 1 diabetes for 40 years.  Exercise, activity, healthy eating and keeping myself in shape and healthy is important to me.

BUT, It’s been a rough few months exercise and otherwise for me. Winter and I don’t get along as far as energy and ambition.  The month of February in Ontario was the coldest on record since 1875.

Word on the Weather Network is temps will reach upwards of about 6C.   It will feel balmy if it is true!  No wind would be nice too!  I haven’t heard about the records set for wind this winter but one must exist!!

Today I work from home finishing up some Admin that’s been driving me crazy. The sun shines bright all day. The bright sun gleaming through the windows blinds me at times. Despite that, I embrace the intensity of it.

Suddenly the hope appears with the time change and the increase in the intensity of the sun.

About 5pm, I take a break from the Admin work I focus on all day.  I put on my ear buds and hook up my music. I make my way to the ‘super mailbox’ up the road to get our mail. It feels so good to get out.  I can’t stop looking to my left, smiling at the sun as it made its way down the sky to sleep for the night.   Today, I am thankful for the gift the sun has given.

I wish the roads allowed for me to put on my running shoes and go, but I can’t stand wet feet…and not good for the well being of them either.

Knowing I can’t let this time go, I take the ‘long’ walk home.

Thankfully, we live right off the Trans Canada Trail…it is just a few minutes walk from our home. I am excited to make my way there as soon as the snow melts and puddles aren’t ankle deep to get my running gear on and go…for miles and miles.

Despite the fact I wear my Blundstones, to keep my feet dry tonight, I want to run so bad. It is so hard not too.

In anticipation of this, I find a post on FB of a T and hoodie that include my Maiden name…and I fall in love. So, I ordered a few work out T’s and a hoodie.

And one for my Dad…cause if it wasn’t for him….I wouldn’t be an Endless Legend!

What do you do to motivate yourself to move?

P.S. Pink is my favourite colour…of what I ordered, I picked a bright pink tee…and I while I wear my fav colour I will remember while I am running or lifting weights…. “I am an endless legend.” for so many reasons.

I’m OKAY!! Really!?

Wedding Cruise5With the exception of the time we dated in high school, my husband Steve is diagnosed with Type 1 spousal diabetes for just under four years.

It may seem silly but I assumed in all this time he knew diabetes like I did.  I can’t even tell you why I thought he would learn 39 years of living with Type 1 diabetes as I have experienced by observing signs, symptoms and random sharing of how I feel in certain situations.  He has never had formal education in the less than 4 years we have been together.

The moment I understood I need to share my life with diabetes more?

We arrived in Lima, Peru.

After settling on the last leg of our journey we decide to head out in search of a few markets and sites for some art pieces.

On the way back, my pump alarms that my sensor is telling me my blood sugars is 4 mmol/L.  My sugar is going down.  Stupidly, I have no sugar on me…Steve is so good he usually does have lifesavers in his pocket…but he has none.

I feel it is lower than 4 mmol/L.  But I am stubborn.  Steve asks if I want him to go into a store and get sugar.  I say it’s OK .

First, when my sugar trends towards low but I feel like I am not in danger, I don’t treat with rapid acting sugar, I set a temporary basal rate.  I think it’s a control thing.  I want to change the stupid system that really works…just to see if I can make it better.  I am so anti-sugar….I really want to take it…mental block.

So…I say to Steve, it’s okay, I’ll set a temp rate.

And we keep walking.

And several minutes later I become dull.  And quiet.  I lack my bubbly, sunshine Type A personality.

Steve knows but doesn’t know.  He hasn’t experienced such an extreme moment like this.

I personify strength.  Knowledge.  Power.  Ability.  I am never the victim.  He trusts that. Even thought his gut tells him different.

DBB Hypo Peru

So he trusts me and my choice.

Until I mumble I want ice cream.  And he asks further questions.  And I am indecisive and vague.

We end up in a grocery store a few blocks away from our hotel.  He asks me several times what I want to get….I don’t know.  In my mind I want to ask him to help me.  Save me from this terrible prison in my mind of wanting to be in control.  Not to ask for help.  I will take care of myself.  I won’t confess I have failed.  I won’t ask.  I refuse.  I won’t.  I have done this since I was a little girl.  My (mis)behaviour trumps my voice.

I am no good to anyone.  I know it.  I am too far gone to say that.

Steve finally suggests and I agree.

We pay out at the cash and I inhale.

Many minutes later Tracy returns.

Later that night we debrief.  He tells me…”I knew, but I didn’t because you know!”, but I did.  And I failed to tell him.  Thankfully he saw it today. Exactly what I just described.

He tells me “…from now when when you say “It’s okay, I’ll set a temporary basal rate.”  I am going to pop into a store and buy some candies.”

And he will tell me.  “You need this candies”.  And I now I will take them.  Regardless of how bad I want to be in control.  Because, we have this consensual contract.

It’s good to share my diabetes.  A liberation.  Enlightening.  It is a relief to give a very small piece of it to someone else.  Even though it is only a very small piece of what my mind thinks of 24-7-365, if feels good. Despite how much control I want.  And how hard it is to let go.

Travelling with My Pharmacy

DBB Huchay Cusco Blog

There will a few posts/Blogs about my travels to and within Peru.

BUT..

I feel this post in particular is a huge one and is pressing upon me to prioritize even though it’s not in order.

We spent Christmas Eve in Agues Calientes. We planned to climb Machu Picchu Christmas Day.

I became very ill with a very high fever and ultimately sinus congestion, sore throat, fatigue among other things.

I am proud of the way the situation turned out as I recovered very quickly compared to most times I experience this. My husband questioned if I should take part in the venture to Machu Picchu but I insisted despite feeling down and out I would not miss such an amazing opportunity. This is a chance in a lifetime!!! And so we did.

With that being said, after we returned to Cusco a few days later we made plans to take part in a two day trek up the Andes mountains, through the Peruvian Tundra. We would then be hosted by a family overnight before descending back down the next day to another town a few hours away from our starting point.

We reach an elevation of 15,100 feet. Understanding that breathing would be a challenge at the best of times, I am overly concerned that with my congestion and swollen throat it would present greater issues.

On our way to the drop off point 1 1/2 hours away by jeep, I ask our guide to stop at a pharmacy to buy cold medication to help keep the symptoms from being too overwhelming throughout the climb.

As I walk into the pharmacy I take note this is the very first lesson I learn.  Never assume I can go away for 2 weeks and be healthy the whole time. I usually pack cold medications, gravol etc for those ‘just in case’ moments.

This is the first time I didn’t take my personal pharmacy with me. Sigh.

Our guide Henry takes me into the pharmacy in Cusco. I tell Henry in English that I need an anti-histamine/anti-inflammatory. I expect something along the lines of Advil Sinus & Cold or Buckley’s.

After the Pharmacist asks Henry a few more questions in Spanish….”Is it altitude sickness?”…”No, I had a very high fever, sore throat and sinus congestion.”…He recommends a product.

I take a ticket to the cash booth/dispensary at the front of the store. She gives me the box of medication. I am so relieved I will have the meds to help with the congestion, I don’t consider that I didn’t tell the pharmacist I have T1 diabetes OR that I took time to read the ingredients.   At this point I don’t make the connection that Dexametasona (in English “Dexamethasone”) is a steroid!!! I mean, come on, I am a Nurse. I should know the 5 R’s!!

AND I can’t buy a steroid over the counter in Canada! For good reason!

I am told to take one pill now (it is 7:30am) and again at supper. I can take it twice a day for a few days.

Within an hour I can feel the relief. I am overjoyed….until…

Fast forward to that evening and into the overnight…AND the next day…my blood sugars begin to climb…and climb…and climb.

I take insulin corrections like drinking water with no change. Not even a flicker in my Continuous Glucose monitor display. My finger pokes confirm all is not right within my diabetes world.

I reflect back on when we arrived in Cusco. Within a day I was setting temporary basal rates on my insulin pump for low blood sugars and now??? I am insulin resistant in the Andes Mountains??

I play scenarios in my mind. Is it the altitude? Is it dehydration? Is it the anaerobic feedback from the intense activity which leads us to experiencing burning leg muscles, shortness of breathe so bad our lungs are burning?

When I work out at the gym and do intense heavy weights my sugars spike. When I do hill training when I run I get the same effect. Is this the same?

At this point I haven’t made the connection yet that the cold meds contain steroids.

I do think that in part, the intensity of the climb did cause an adrenalin surge that did cause my need for more insulin….pair it with an exogenous steroid in my cold meds and here is a recipe for blood sugar disaster.

My key take away?

Bring my own cold meds and pharmacy.

If ever in an emergency that I require medications while in another country, make sure to tell them I have diabetes.

If and when I decide to ascend to 15,100 feet (or higher), take note and act that if it feels anaerobic, increase my insulin rates to accommodate to it.

No doubt it is a tough balance to achieve but I wouldn’t want to throw my hands in the air and not keep playing the game. Next time I want to improve on this experience. I accept my sugars will never be perfect in these situations especially, but, I will do my best.DBB Dexalor

Being “Normal”

Image

What does every parent want when their child lives with Type 1 diabetes & it’s any special event whether it be Christmas, Hallowe’en, Birthday Parties or Easter? To portray it’s the one of the few times of their life they can enjoy what everyone else does. Well, sort of. But that’s the best we can offer, right? Do they remember or know any different? Kurtis never told me so. I don’t remember so.

From the ages of 8-11 I don’t remember what I did with Kurtis at Hallowe’en. That was the time when he took multiple daily injections. Life was a whirl wind. I worked shift work at the hospital. My whole life evolved around my children…I worked my job, my health, my diabetes…everything around the kids. I was a single parent a lot. I didn’t have a team mate I could pass the baton to & ask to take over. My focus consisted of; were the kids fed well, did they have lunches packed for school, were they doing well in school, were Kurtis’ blood sugars okay, what did I need to do make them ok, appointments for his diabetes, making sure Cayla didn’t feel like Kurtis was the centre of our family because of his diabetes, what did the kids have for homework, hockey, figure skating, testing Kurtis’ blood sugars day & night to keep him safe, setting my alarm to check him, arranging care for the kids for the few times I wasn’t there, making sure the people caring for him understood what to do with his diabetes…you get the whirl wind?

Do I remember what I did for Hallwe’en on injections? Vaguely. I know for a fact I would have kept his candy intake balanced so that his sugars weren’t crazy for days. I vaguely remember letting him pig out the night of after he returned from collecting his stash..to an extent. Then going forward matching meals with treats to keep it balanced.

Once Kurtis was on a pump, I was not so concerned. My mindset was eat it all sooner then later so that we have 1 week of craziness then 3-4 weeks of drawing it out & really messing things up. The bonus was he could put the carbs in his pump & burn it off with activity. I was lucky because Kurtis only liked certain candies. The rest he would never touch.

Christmas stockings & Easter hunts involved a lot of non-candy things from Wal-Mart & the dollar store. I kept it the same for both. The kids never said to me “where is my candy” or “why don’t get as much candy as the other kids”. I remember as a child living with Type 1 finding a brand new pair of running shoes (which I needed!) hidden for Easter! I was SO excited because they were the cool pair I wanted! You can’t substitute candy for something so wonderful as that!

Creativity & letting normalcy rule within the boundaries of keeping your child safe, is essential to an enjoyable, stress-free Hallowe’en.

Covering Up

Image

Covering Up

Another great update from Eden!! Eden’s diagnosis of Type 1 diabetes came at the age of 17. After gaining a lot of weight & feeling she did not have the support from the health care profession she needed to empower herself. Eden set out on her own to learn & discover how to live life with diabetes beyond borders. Eden has a very busy life, finishing her degree at University as well as setting goals to manage her diabetes & lose weight in a healthy way before her graduation in May.

Support Eden as she moves forward daily in her journey to empower herself living with diabetes & successfully meet a weight that is healthy for her body. What she is achieving since being diagnosed 4 years ago is nothing short of amazing!

“Hey Everyone!
So yesterday was a big day for me, I wore a sports tank top while exercising! This may sound ridiculous, but I have never showed off my arms working out…EVER! The one and only time I did not have anything covering them at all was at my prom, and if you read my previous post…not my favorite time since I gained 30 pounds! At first I felt self-conscious, but then I thought no one is even paying attention to me. It was fantastic not wearing a hoodie while doing extreme cardio!!! OMG I didn’t get as sweaty and overheated….AMAZING haha. I felt confident that I could finally (in my mind) pull off this look! I will post a picture tomorrow.
Luckily I have one more week of classes left, and then I can start hitting the gym for longer periods of time, and really focusing on my weight loss! I would like to be at the gym for 1.5 hours a day instead of 1 hour. I am so excited to get this semester over with, since I have 6 university courses, gym, part-time work and balancing my time between 3 houses (my home, my boyfriends, and grandmas). I refuse to give up and I would like to be at least 158-160 before I walk on that stage to graduate. I am getting a dress in 4 weeks when I go to Toronto, and buying it smaller so it fits me perfectly on the big day” :)

Finding Balance

Image

Finding Balance

I just completed The Holmes and Rahe Stress Scale.

In 1967, psychiatrists Thomas Holmes and Richard Rahe decided to study whether or not stress contributes to illness. They surveyed more than 5,000 medical patients and asked them to say whether they had experience any of a series of 43 life events in the previous two years. Each event, called a Life Change Unit (LCU), had a different “weight” for stress. The more events the patient added up, the higher the score. The higher the score, and the larger the weight of each event, the more likely the patient was to become ill.

Below is the score Interpretation

300+ You have a high or very high risk of becoming ill in the near future.

150-299 You have a moderate to high chance of becoming ill in the near future.

<150 You have only a low to moderate chance of becoming ill in the near future.

Upon taking the survey, it did not consider that I live with diabetes, I have a 19-year-old 'child' living with diabetes who has recently experienced complications, I am still going through court proceedings trying to settle with my divorce, starting two new businesses AND most recently after months of severe undiagnosed pain I finally have a diagnosis in which I will be going for major surgery for in April.

So, not including the above mentioned, the score I 'achieved' is 687. Of the 43 items listed, I have experienced 22 in the past 2 years.

I am not writing this to have you think to yourself "Oh poor Tracy".

I am writing this for 2 reasons:

1. Understanding that everyone has life events that are very stressful. Sometimes when in the middle of it all, as these events pile up one on top of another, it is very difficult to step back and see what has occurred. It is even more challenging to see the positive or how to take care for yourself in the midst of it all. There are many events in life that we cannot change. It is important to accept this and decide ways to find balance by taking care of ourselves.

2. I need to write this to help me. I have wanted to do the survey for a while. I knew the score would be high, so it was not for that purpose. I took it today because I am so tired. So tired, I needed to make myself take the survey so I could sit down & figure how I could find balance among all of it. I am not taking the best care of me as I have in the past. It's time to change that.

The picture posted is from my walk yesterday. I had 2 choices yesterday; sleep or walk. My body felt full of toxins from the stress. I haven't been listening to my body as I should. Although I was extremely tired, my mind urged me to go for the walk. I needed to get the blood flowing and help my body clear out the toxins and my mind.

We ended up driving to a park in the city. We took the puppy and started through the park. I felt like I was in the country. No traffic noise, lot's of trees and snow. We didn't talk much. We both just needed to 'be'.

Initially in my mind, I didn't want to go far. I have an ongoing list in my head of tasks that need to completed at home both on a personal and business level. But as I walked further, I realized that this list never has nor will it be finished. That's life. For this walk I needed to let that never-ending list go and enjoy the moment for my health's sake.

We ended up walking 10 kilometres over 2 hours. Towards the end of the walk, the tightness in my chest and my inability to take a deep breath began to disappear. It felt so good to take a deep breath.

Today we will do the same. I will leave that list behind. I will leave the items I have marked off on the survey behind. I will envision taking these items and tucking them away in a closet only to taken out when absolutely required. But not on the walk.

I urge you to take the survey. Determine where you are at in your life when it comes to stress. Then, decide what you can do to balance these items. Whether it be reading, going to the gym, taking a long walk, yoga, stretching, having a long relaxing bath, lighting some candles and listening to music, playing with your kids, hugging the ones you love.

"Take rest; a field that has rested gives a bountiful crop." –Ovid

"Its not stress that kills us, it is our reaction to it."
–Hans Selye

A Parent’s Love

Image

A Parent's Love

It’s so hard to be a parent of a ‘child’ with diabetes. Kurtis has lived with Type 1 for 12 years.

My 19 year old ‘baby’ had his eyes examined & the results were not good. Two eye exams ago he showed signs of a small hemorrhage at the very back of his eye. It healed. We explained to him why (he knew) and what to do to change it (he knew). This time, as a result of poor control (he doesn’t test & does not see his diabetes team which is typical for this age), he has 2 new hemorrhages in the back of his other eye. The damage is correctible IF he improves his control. Definitely a bright light in the long dark tunnel it feels it is becoming.

To keep calm & be the bridge he needs to cross over to the next journey he needs to take is so hard, but as a parent we know it is a necessity.

I always want to view the glass as half full. With that being said, Kurtis asked about laser eye surgery for correction of his vision (by birth he only has 20% vision in one eye, he vision is very poor). Both myself & our Optometrist piped up that he needed to get his diabetes under control & correct the damage done before that was even a consideration. It seems that is his ‘carrot’ that dangles in front him for motivation. We did not lecture, we just briefly stated facts.

I asked him if he’d like me to book a diabetes clinic appointment and he declined. It’s hard but I have to let him figure it out on his own for now. Balance as a parent is so hard at this stage of the game. So hard. But necessary. If I smother him with harassing comments & overbearing actions he will continue to rebel. I need to let him sort it out and support him when he is ready. And pray…a lot.